We moved last summer to a new state and city, and decided to wait a few more months before meeting with a new specialist. Again, on the recommendation of other women and my new OB/Gyn, I found a renowned infertility specialist and began to psych myself up for the appointment. My husband also (finally) shared with me his trepidation about this appointment, and our combined fears and anxiety led me to the state in which I first blogged about my history.
We had our appointment earlier this week and I could not be more shocked, angry, and hopeful. I had forgotten to have my previous files transferred to this new office, and so I expected this consultation appointment to be brief and with an outcome to attempt another IUI or IVF. Instead, the doctor asked a small handful of very specific questions, requested an immediate exam, and within ten seconds had diagnosed me with PCOS (polycystic ovarian syndrome).
WHAT?! "Are you sure?" we both said. One by one, he counted the multiple cysts, the "string of pearls" that are so indicative of PCOS. Combined with my weight history, anovulation, and failed attempts with even the highest dosages of medications, he was confident. He immediately grabbed two bottles of metformin and prescribed a low/no-carb diet for us both. The diet and pills we can handle, but how did this go undiagnosed for over three years?? How, after month after month of internal ultrasounds JUST like the one he had just performed, had this so-obvious condition not been considered? He told us that many women with PCOS find conceiving much easier after taking metformin, though nothing is a guarantee, still. We are both still shell-shocked, but have already cleaned out our fridge and cupboards and are focused on getting healthy.
Even though we are eager to see if this helps, I'm still conflicted and hesitant and anxious about getting pregnant. I'm not a terribly religious person, but I spent some time in a chapel earlier this month, praying fervently for some kind of direction. All that kept repeating over and over in my mind was "You will have children. You will have children." It sounds crazy, I know, but I'm going to take all the chances I can and exhaust the options we can afford.
The moral of my unfinished story is that, no matter your diagnosis, seek other opinions. Whether you struggle with infertility or any other condition, do not settle on just one opinion. I'm not saying my first set of doctors was wrong or treated me incorrectly, but I certainly wish I had sought other counsel years ago.
I feel like I just read my own story.. thousands of dollars spent and nothing. Went to a new Dr. and within minutes just by answering questions he diagnosed me with PCOS. Good luck to you! The metfromin in hard and makes me sick to my stomach, but I take it anyway in hopes of a child. The weight battle is harder bc w/ PCOS its your body holds onto any carb it can get and your body isn't great at breaking down the sugars but reading your story is a breath of fresh air that I am not alone! like I said good luck! :) I am going to continue to follow your story and hopefully soon we will both get BFP's!
ReplyDeleteI hear your pain. I am the parent of a child who so desperately wanted only to be a husband and father. Husband he was, but not a father. They were told they could never conceive without IVF. She had a condition that required a bilateral tubal ligation to prevent "back-flush" if IVF were going to work.
ReplyDeleteThe cost you speak of is spot-on. None of IVF is covered. While other couples were buying houses and cars, my son and DIL were paying for the "hopes" of having a child. Nothing is guaranteed with IVF.
The blessing is that they did conceive, a cute little girl who is now two years old. I sit here today awaiting the news of their current IVF procedure. We should know in 10 days. I pray, a LOT.
I read through your list of what to say, how to care for a friend and their spouse...it too was spot-on. People just don't understand the pain and frustration.
My kids were in Michigan and now in Texas, they used two different clinics. I have not been to the Texas clinic, but the one in the Detroit area was OUTSTANDING and treated by kids wonderfully. They still are in contact with the staff there. They are very hopeful of the Texas clinic.
I will keep you in my thoughts and check back in from time-to-time. I wish you peace and happiness.
jmmox@me.com if you ever want to connect.